Member
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Join Date: May 2008
Posts: 236
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Member
Join Date: May 2008
Posts: 236
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The syrinx can be asymptomatic. I have a syrinx extending from C3 down to T1. I have moderate bilateral cervical stenosis at C5/C6 with milder changes at all other cervical levels. The syrinx was found back in 2003 after an MVA. Mine is periodically monitored for growth (i.e. increase in the width and/or length). I've been to several neurologists, neurosurgeons and physiatrists over the years. Not one of them seemed knowledgable on the syrinx. If you want to see someone specifically regarding the syrinx to rule in (or out) that it's causing you problems, you need to check out the ASAP.org website and try to find a practitioner near you that has worked with syringomyelia patients.
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