Thanks, Abby. Not much I can do about my symptoms until the cause or causes are all figured out, which I don't think they have been. We all have a tendency to talk to doctors about our worst symptoms and not all of them, which is why I think writing things down for a doctor is such a good idea. I still suspect you have MG, even without the antibodies.

On that website, there is MG, LEMS and CMS. They can all have an onset at any time in life, even CMS. There are adult onset CMS's too. The blood tests for CMS are covered by insurance if a doctor suspects that. They are often sent to Mayo in MN but WI has a lab too, but I don't know anything about it. Sorry, guys, I can't remember who had brought the WI lab up!

Athena, I hope you will consider a 2nd opinion from an expert. Neurologists are not "all-knowing," as much as they like to think they are. Some of these diseases are odd little things and they may not even think or know about them while checking you over.

Sorry you guys are in limbo. At least there's lots of company there!