Senior Member
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Join Date: Feb 2010
Posts: 1,215
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Senior Member
Join Date: Feb 2010
Posts: 1,215
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Thank you, Annie. I am at peace with Limbo for now, because the Mestinon controls my symptoms well enough that even if I had a firm diagnosis of MG, I'm not sure I'd agree to starting immunosuppressants. If I start to decline, or if some doctor decides to take away my Mestinon, I'll have to fight harder. I could insist on a trip to Mayo, for example.
All my sympathy is with people in this sort of Limbo who are being denied treatment they could get if they only had a diagnosis--especially people who are suspected of being hypochondriacs.
Abby
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