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Old 02-14-2007, 06:52 PM
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Aussie99 Aussie99 is offline
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Join Date: Aug 2006
Location: Australia
Posts: 933
15 yr Member
Aussie99 Aussie99 is offline
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Aussie99's Avatar
 
Join Date: Aug 2006
Location: Australia
Posts: 933
15 yr Member
Default Unusual question

I am hoping that one of my fellow PN'ers with some hard PN knowledge will comment on my dilemna.

Something has been bugging me. I am coming up to the 2nd anniversary of the onset of PN symptoms. Just to refresh, my PN hit my eyes first. It was prickling & burning in eyes for about 3 days or so,and then moved to the head area for another week. I was having months of sudden 10 second pounding headches. It was as if someone cracked me in the head with a hammer quickly, and then the headache went away after 10 seconds or so. Basically I was having very bizarre things in the head region.

Then the PN moved downwards to chest,arms,hands,and the rest of body. I am a bit fuzzy with details from there, as I never really kept notes.

Well I have had alot of improvment since then, thank God, but I still feel very weird in my head. I feel like my head is really stuffed up, dry,inflamed, and fuzzy. I have mentioned my eyes are dry and painful. It also feels as if my brain is really dry or something and I feel a daily low level heat or inflammation in brain area.

My MRI was normal as was a CT scan & EEG. I have had massive amounts of blood,urine, & immunology testing all come up negative.You know how people say that when their BP goes up sometimes they get really hot and or flushed. When my BP goes to say 130, I notice immediately because my face will start feeling warmer, even though that's such a minor change. I know it sounds odd. At 140 or so, I feel ravaged like my head is on fire or something.

But all these feelings of pain, and oddness I mentioned earlier happen even under normal BP conditions,as my head always feels very heavy,painful and fuzzed up.

I know this all sounds odd but does anyone have any ideas as to what might I do? I am not taking any meds except BP meds,and this all surfaced before I started on BP meds, at onset of PN.No doctors have any explanation as of yet. I have a normal-high ESR and dry eye syndrome and that's basically it.

Any and all opinions are much appreciated.

Thank you
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