Junior Member
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Join Date: Aug 2010
Posts: 22
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Junior Member
Join Date: Aug 2010
Posts: 22
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Thanks, Ladies,
I love the website you cited, Annie. I've had it bookmarked for a year or so and refer to it every time I have new procedure or blood test to see if I can glean anything new from it.
I've been having symptoms for a year and a half now. It started with hiking, and now that my level of exertion is down, I get weakness with yoga, cardio in the gym, or long walks. I just listen to my body and rest when I feel the weakness coming on.
My first neurologist tested me for MG antibodies, then referred me to a neuromuscular specialist for the electrical studies. From there I had a biopsy for metabolic myopathies which showed a dysimmune process sort of like polymyositis but more consistent with a paraneoplastic response. My rheumatologist has been unable to come up with anything related to connective tissue autoimmune disease and will refer me to a neurologist out of state if the LEMS antibody results we we're waiting for come up negative. On paper I'm perfectly healthy except for the muscle biopsy.
Thanks for your advice and support!
Athena
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