It seems like knowing about the disease and knowing about our individual cases would be the appropriate goal to achieve. However, there is much evidence on this forum that members sometimes spend years trying to figure things out, and get diagnoses and treatments, only to wind up where they started from, i.e., their docs tell them, "Well, we're not really sure what you've got and, besides, there is no treatment for it."

I am referring, of course, to looking for answers from doctors, etc. The alternative is looking for information (if not answers) here on this forum, which is much more helpful to me, and much more important to my condition.