I have looked up porphyria but it doesn't fit my symptoms. The sun sensitivity is a new sign. The redness doesn't last long once I'm out of the sun but it is too painful(burning)to stay in the sun when I'm having an episode. I get the burning through my clothes even jeans and the skin turns temporally red.
I always hope a new sign will point towards a diagnosis. The burning and redness is back, chest and legs only but I will break out sometimes in an itching ,ugly, chest rash that lets me know my fatigue and ill feelings are about to return.
I am also heat intolerant and my temperature gauge is out of whack. It can be broiling hot and I think its pleasant till suddenly I get sick from the heat!
I'm not taking any meds but B12, Vit. D sometimes tylenol sometimes cortisone cream for the rash. I hate drugs and believe so many of them are making people very sick. JMHO
I have so many MS symptoms but luckily do not have MS (MRA).
Thanks again