Quote:
Originally Posted by Sheltiemom
Guess I kept flailing for something else because there's no cure for Sjogren's and kept hoping something that was "fixable" would pop up.
Does anybody else here have a definite Dx of Sjogren's and non-length dependent small fiber neuropathy?
|
I do not have those problems, but I do have a question.
I know that if it the cause is something like an autoimmune disease or something that can be treated or cured, the original cause would cease to exist. But, would the PN just go away along with it? Because everything I have read points the other way--even if the original cause is taken care of, the PN is here (usually) for life and while the symptoms can be controlled to some extent, the PN cannot be cured. Is that not the case?
I got PN from being too low in Vitamin D (and possibly B12, though it wasn't low until after I was already diagnosed with PN). My Vitamin D level is back up to normal and yet the PN continues to stay the same. I treated the original cause, yet my PN symptoms have not gotten better even a tiny bit, and have definitely not gone away totally. It was my understanding that this was the case all of the time. Maybe that isn't correct?
Are there other things that the Sjogren's causes besides the PN? Are there ways to treat the Sjogren's, even if it can't be cured?
Most people seem to really want to know the cause, so I am glad that you have figured that out... but wish more than that, that the symptoms could go away for you!
__________________
.
♥ "Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before." -Holley Gerth ♥
My name is Sarah and I am 25 years old. I have a lot of chronic health problems. Peripheral neuropathy and POTS (postural orthostatic tachycardia syndrome) keep me bedridden the majority of the time. I also struggle with degenerative disc disease, disc desiccation, spondylolisthesis, arthritis, polycystic ovarian syndrome (PCOS) with insulin resistance, allergies, sound sensitivities, and other health problems.