Geez, Tulips - wishing you to doctors who will take your case in hand and do something about it. You have serious issues.

As to how Sjogren's is diagnosed - no expert but Inga is.

Mine was diagnosed clinically - the extremely dry skin, dry eyes, dry nasal passages, dry cough and by skin biopsy that showed non-length dependent small fiber neuropathy and by saliva gland (lip) biopsy. The lab work last January and up through July was all normal. In other words, the markers for Sjogren's and/or other autoimmune diseases were absent in my bloodwork.

I, too, don't think the neuropathy will ever go completely away because the underlying cause is an incurable autoimmune disease. And even if there were a cure for it, that doesn't mean that the nerves would fully repair. Am just thankful there's recently been as much neuropathy improvement as there is.

Thanks, Sarah Mae, for your good wishes. Many returns to you, as well. Maybe somebody all of these afflictions will be history - hopefully during the lifetimes of the younger ones among us.