Quote:
Originally Posted by Mycah
Good advice. I've never thought much of counselors as I thought most were all just Paid Listeners. Fortunately we found a kind lady that helps both of us in individual sessions.
I'm not much of a talker/sharer when it comes to deep, hard-to-talk about subjects. I don't like getting out of my comfort zone and will avoid those talks then become the passive-aggressive type. But gradually I'm sharing more and he's learning more and together we're getting better.
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I've always felt that once one becomes seriously ill..That is only the beginning of their concerns..So incredibly sad as our disease affects us, our husbands/wives, children, familys and friends..all who know us differently..esp our loved ones.. but then I have also said I would never ever want anyone else to have to live as I do..with incredible constant pain... my husband does have some trouble with my being ill.. although he trys to be supportive as possible..and yes, it has placed a big twist on 'our' life... I think out of his love for me it is really crushing him inside..Although he does try to bear the pain of his heart..he has taken on the shopping and cleaning on and on duties I am no longer able to do.. but I can see this really saddens and angers him all at once.. Just as we miss our old selves they miss us too..But as a family...we have to unite and work together..He has yet to go or accompany me to conseling..and as I have come to appreciate the smaller more simplier things in life..he has gradually done the same.. I know it takes time for us all to accept this and then live with it... I post the articles on the refrigerator as well as protect he and our children from the stagering progression of my RSD... I feel very bad for all of our loved ones as I know how devestating our RSD affects us...I honestly would hate it if I had to watch my loved one have to suffer with it..
Great thread....
Hugz, Kathy
