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Junior Member
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Join Date: Oct 2010
Location: Lido Beach, NY
Posts: 47
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Junior Member
Join Date: Oct 2010
Location: Lido Beach, NY
Posts: 47
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Chronic pain, fatigue - secondary progressive ms
Hi I'm new here also, just posted in the new member introductions so I won't bore you with my story again. But I have secondary progressive MS that is progressing rapidly. If the pain scale went from 1 to 20 instead of 1 to 10 it still WOULD NOT be HIGH ENOUGH to measure the level of pain I experience on pretty much a daily basis. The way I explain this to "amatuers" (people with no personal experience with this) is I FEEL LIKE I AM LYING IN A VAT OF HOT OIL 24/7 THEN EVERY ONCE IN A WHILE "SOMEONE" STABS ME IN A LIMB, MY FACE, MY STOMACH, MY BUTT (it can be anywhere) WITH A RED HOT POKER! Since Sunday the pain is BEYOND DESCRIPTION it is MOSTLY ON MY LEFT SIDE. I have a CONTRACTURE in my LEFT HAND (dominant hand) & THAT IS WHERE THE PAIN IS THE WORST. I CANNOT even sit here & enjoy a favorite TV Program because that DAMN HOT POKER WILL NOT STAY OUT OF MY LEFT HAND!
I have been the gammet of medications & NOTHING HAS HELPED. I am OFTEN IRRITABLE & ANGRY; I get MAD @ the WRONG PEOPLE because I am so ON EDGE because of the pain.
If ANYONE knows how to STOP IT then PLEASE PASS IT ON!
Some days I am ready to put my head thru a wall because THE PAIN IS SO BAD!
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