|
Junior Member
|
|
Join Date: Oct 2010
Location: Lido Beach, NY
Posts: 47
|
|
|
Junior Member
Join Date: Oct 2010
Location: Lido Beach, NY
Posts: 47
|
My experience
Beginning in my mid-teens I had these sensations quite often but there was no explanation found for why. At 23 I was diagnosed with MS after developing several more symptoms (confirmed by spinal tap).
Over the years these painful sensations were anywhere from mildly annoying to so bad I wanted to kill myself.
Presently I live with 24/7 neuropathic pain where I feel my body is in a vat of hot oil. Very, very often my pain is beyond description. I have been suicidal the pain is so bad. The doctors have not found a medication yet to help me.
My neuro explained that this is based on the location of my lesions; not that that relieves the pain. So now I know what causes the pain how do I get rid of it?
I will be 49 next month statistcally I should be alive quite a few more years - is this how I am going to have to live the rest of my life?
I CERTAINLY HOPE NOT!
|