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Old 10-20-2010, 12:11 PM
snowboredchick1 snowboredchick1 is offline
New Member
 
Join Date: Oct 2010
Posts: 5
10 yr Member
snowboredchick1 snowboredchick1 is offline
New Member
 
Join Date: Oct 2010
Posts: 5
10 yr Member
Default I have been requesting amputation because of RSD

Hi my name is Tina Leet and I am currently still in the navy and facing the med board. I got diganosed with RSD type 2 back in 07FEB2008. And you know navy doctors, well we have tried everything and know they just don't know what to do. I keep telling them to amputate because its already spread through my lower right leg. Mine started off the same as yours did the inside of the knee. I have not walked in almost 3 years and I can't take it anymore with the doc's just saying well maybe in 5 years they will have a cure well for me that's to long to wait and if I wait that long it might be in my left leg. Any way I just got back last week from a military paralympic camp and I met a guy from Isreal and he had RSD for 8 years in his left leg. He pushed for amputation and the doctor did it. I asked him if he still has the disease and he told me he has no pain and he was walking and running on his prostetic! He told me that they have to amputate at least 5 to 6 cm above where the RSD is for the best chance of getting rid of it. He has been RSD free for 3 years now! But you have to remember that it is a 50/50 chance that either the RSD will be no more or that it will make it worse and spread faster. And the bad thing about that is that no one knows how it will turn out until they try. I have done so much research on this disease ever since I got diganosed with it because I thought that my neurologist in Japan was making it up. I guess I just didn't want to believe him because of how terribable the RSD is. If you have any questions or if you get any more information please email it to me I will do the same if you want me to. Also I will ask my friend if he wouldn't mind me giving you his email address so you can talk to him on this matter.

Thank you

Tina
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