Quote:
Originally Posted by glenntaj
While it is true that for many getting an actual diagnosis many not mean much in terms of differences in treatment, it can be important for insurance/reimbursement purposes.
Not to say that all, or even most, people fit in well with some of these diagnostic categories--i.e., the number of people who get some diffuse autoimmune diagnosis when they don't "calssically" present with the "accepted" clinical signs of lupus or Sjogren's--but having the "label", as unfortunate as it is, may enable them to get or continue getting what treatment there is, and not have to pay for all of it out of pocket.
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That makes sense. I didn't think about that--but there is no treatment that is available for me for neuropathy so I don't have anything that needs to be covered.
I wasn't saying that people shouldn't care or try to find a cause.. just that in the end, most of the time it doesn't change anything. So many people put so much time into finding the root cause, and never get the proper treatment/help to treat the symptoms. It just seems silly when most people end up having a cause that will change nothing in the end. I know that in some cases it is important to find the cause because there could be additional problems that may require treatment.
It's just that some people get so focused on finding a cause when they have already had most or all of the tests out there... and it seems that in the end, very few ever find a cause so there is so much time and money involved in it just to have no end result.
Obviously it's up to the individual. In the end it is their time and money and energy and they can spend it any way they wish. I just know that I wish I didn't know the cause of mine.. and knowing has done nothing positive for me. Doesn't mean that is the case with everyone.
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♥ "Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before." -Holley Gerth ♥
My name is Sarah and I am 25 years old. I have a lot of chronic health problems. Peripheral neuropathy and POTS (postural orthostatic tachycardia syndrome) keep me bedridden the majority of the time. I also struggle with degenerative disc disease, disc desiccation, spondylolisthesis, arthritis, polycystic ovarian syndrome (PCOS) with insulin resistance, allergies, sound sensitivities, and other health problems.