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Junior Member
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Join Date: Oct 2010
Location: Lido Beach, NY
Posts: 47
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Junior Member
Join Date: Oct 2010
Location: Lido Beach, NY
Posts: 47
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Ms & neuropathic pain
I have MS over 25 years it is now Secondary Progressive.
I chose a neurologist who is supposed to be one of the best @ treating MS. When he speaks @ MS events he speaks elequently about the importance of QUALITY OF LIFE & MANAGING A PATIENTS PAIN but i n reality HE HAS DONE NOTHING FOR ME.
Despite my explaining to him my prior experiences with drugs like NEURONTIN; LYRICA etc. ALL HE DID was TRY these medications again. I had the SAME SIDE EFFECTS & MOST OF ALL - NO RELIEF FROM THIS UNRELENTING PAIN.
If the pain scale went from 1 to 20 instead of 1 to 10 it still would not be high enough to measure the level of pain I feel on pretty a daily basis. I feel as though my body is sitting in a vat of hot oil; then just to make sure I am in a sufficent amount of pain "someone" stabs me with a hot poker REPEATEDLY throughout the day & night. It might be my face, an arm, a leg, my butt - THERE IS NO TELLING WHEN, NO WAY OF STOPPING IT & IT IS DESTROYING ME.
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"OUR LIVES BEGIN TO END, THE DAY WE BECOME SILENT ABOUT THINGS THAT MATTER"
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