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Old 10-21-2010, 10:19 AM
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LizaJane LizaJane is offline
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Join Date: Aug 2006
Location: Brooklyn, NY
Posts: 805
15 yr Member
LizaJane LizaJane is offline
Member
LizaJane's Avatar
 
Join Date: Aug 2006
Location: Brooklyn, NY
Posts: 805
15 yr Member
Default keeping track of your tests: LizaJane.org

For those newly diagnosed with peripheral neuropathy, as well as anyone wanting to take control of organizing his or her own lab test results:

www.Lizajane.org

This is a site I put up years ago, and which is popular with pn-ners world wide. It contains lists of tests which should be done to make diagnoses in cases where the cause of neuropathy is unclear.

The charts can be downloaded into an Excel Spreadsheet. You can fill in the charts on your computer, or just print them out and fill them in by hand. You can print them out and take them to your doctor. (Despite trepidation, nobody has yet had a doctor be anything other than grateful to see them).

The charts indicate tests for primarily sensory and primarily motor neuropathy. They include tests for genetic, toxic, and metabolic causes. There is a checklist to keep track of what tests you've had, and which your doctor says is unnecessary.

Even routine labs, like blood sugars, can be put into the charts, and you can follow them over time to see your progress, good or bad.

Please feel free to use them, and to contact me if you have any questions or suggestions.

LizaJane
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LizaJane


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--- LYME neuropathy diagnosed in 2009; considered "idiopathic" neuropathy 1996 - 2009
---s/p laminectomy and fusion L3/4/5 Feb 2006 for a synovial spinal cyst
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