Senior Member
|
|
Join Date: Feb 2010
Posts: 1,215
|
|
Senior Member
Join Date: Feb 2010
Posts: 1,215
|
Thank you, Jana! It makes me feel good to have all these friends I've never met who care about me anyway.
Annie mentioned polymyositis to me, too. I sort of pooh-poohed it, mostly because I have no pain (did I mention how grateful I am that I have no pain? I know that not everyone with MG can say that). But I see this is listed as a minor symptom.
I will talk to the doctor when I see him soon. I suspect he will tell me that the CK-serum test rules it out. Maybe it's time to repeat that test. I see that there are also specific antibody tests for polymyositis, and that sometimes MRIs can diagnose it. Or muscle biopsies.
Last time I saw my doctor, I was in the middle of a "good" period. I can see why he wasn't pushing to diagnose or treat this--I was doing quite well. Right now, I'm in the middle of a downswing. I'm going to call him right now and ask if he'll see me right away instead of November 2.
Thanks again. I really, really appreciate it. Thanks to you, too, Annie, for all the help you've given me. It's not just medical knowledge you pass on--it's seeing what a fine human person someone can be even when she's got a horrible disease. That is immensely important to me.
Abby
|