Quote:
Originally Posted by Sheltiemom
Well done, Melody! That was a very nice piece of video work.
Would you mind telling us how the group's first meeting was advertised? Am thinking of starting a support group in my Ohio home city for Sjogren's Syndrome people who also have neuropathy as a complication - catching two birds at once, so to speak.
Sheltiemom
|
Hi there.
I really have no idea. The first meeting Alan and I went to was 10 years ago and it was at the Lighthouse in NYC. I was a HUGE meeting with hundreds of people.
For the past few years, it has been at the CBS building in NYC.
I gather if you go to the Neuropathy Association's website, and search Support Groups, maybe they will have a link "Start your Own"
Or maybe the Sjogren Organization has a website that you could go and find out about starting your own support group. It's a nice idea that you have.
Best of Luck
Mel
Melody