Peep, how's everyone?
Lol. I'm going to b more regular here now, finally stopped work yesterday, and will b resigning officially end of the month.
It's been an amazing 6 mths back at work. I gave it my best shot and was top in my branch those 6 months. Finally had to stop now, as my speech n weakness got kinda bad. I know I'm gonna miss my clients, told them I'll b back when I recover.
I've been in China these past 3 mths, searching if there's anything that traditional Chinese medicine could do for me. Found a few good doctors, met some quacks. Lol. My diagnosis is more or less confirmed now, it's either PLS or UMN dominant ALS. To me there isn't really much difference since both has no cure, tho out of the two I'd rather choose PLS. Haha.
I met so many people like me, that I felt somewhat comforted. I felt pretty normal there. Haha. Saw a few of the top neuros there and all confirmed it's some sort of MND. One of the two. Finally mustered up enough courage to c a neuro in Singapore again, and amazingly I found a really good one. He's old, prob in his 70s, but many neuros used to b his students. He conducted my neuro exam with such finesse that I was drawn in. Lol. During the exam my foot went into a spasm and he witnessed it. It was "vibrating" the whole 20 mins during which he tested my reflexes n everything. He saw my probs and said it's not something easy. Asked me to go back to my old neuro, whom he knew personally n said he'll talk to him to make sure he looks at my peobs w a whole new mindset. This new neuro was really concerned about me, as he could c I wasn't faking it. Kept reassuring me I was doing well even tho I know I failed half the tests. Lol.
Spasticity has become so bad that my left foot has foot drop now, and atrophy, coupled with my left foot turning inward. I can't even place it flat on the floor now. It also goes into spasms when it feels like it. Lol... My left hand has the same problem. My speech is also mildly affected, it's hoarse when I try to project my voice n my tongue is loving my right cheek so much I can't move it toward my left cheek. Only realized this at the last neuro visit w the new neuro. Kind of freaaked me out.
Currently am on 55 mg baclofen and 50mg myonal. Am supposed to keep increasing the dosage but it's making me real drowsy.
I had a session to announce to my clients yesterday that I'll b leaving and today I hav a very sore throat and legs are aching really badly.
Now I'm gonna hav so much free time I'll b on here ev day unless my body fails me. Lol... Missed all of u badly. Tho I wasn't here, u guys were always in my thoughts!!!