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Old 10-24-2010, 05:50 PM
kathy d kathy d is offline
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Join Date: Nov 2006
Posts: 327
15 yr Member
kathy d kathy d is offline
Member
 
Join Date: Nov 2006
Posts: 327
15 yr Member
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Hi Dawn and All,
I have to tell you all about my bad experience last month in Philly at Hahnemann. While I was inpatient for 5 days with Ketamine infusion an idiot for a nurse put me on the commode and left the room with me there. Well, being as unconscious as I was I apparently got up or went to move onto the bed and fell flat on my back and hurt my neck and back. They let me go from the hospital unconscious, I don't remember the first week back at my home afterwards, I've been to the ER four times (and admitted once) in the last month, lost ten pounds from severe vomitting and diarrhea, the infusion was the most terrifying experience of my life (I thought the nurses were trying to kill me), and I've just spent a month flat on my back with no help in bed. I tried the first booster this past Thursday and barely got home only to have severe chest pains and thought I was having a heart attack. EKG and all are good but the ketamine did not work. Dr. S said "I don't have anything for you." Sent me home and canceled the rest of my treatments. Oh, and 24 hours after I went in for the infusion they took off my fentanyl patch and I spent the next two weeks having a nervous breakdown from the withdrawls!!! I just spent a month in hell. My pain is now 1,000 times worse than before and none of the pain meds even work now. I just started to have about 20% pain relief today because I had to go back on oxycodene. My neck and back are killing me as my entire body. I was down to using one cane before treatment and now are back in wheelchair using both canes again and barely able to move to get out of bed. I feel like I reverted back to five years ago when it all began. Dr. S wants me to go back and have 5 day infusion again and there is no way I would ever do that again. I just want to warn everyone to make sure they know about this powerful drug. I researched it for 3 1/2 years and never heard of all the mess I went through.

I thought they should have given me PT while I was in the hospital but they left me there in bed for 7 days straight with none of it. I found out through a home aid two weeks ago that for every day you lay in bed in a hospital you will spend 3-5 days recouping at home. Well, I've been in bed for a month straight now. Today is the first day I can even sit up on computer for 5 mins. Just be careful. I found out that once you have the treatment and get hurt it comes back worse than before. I could just shoot the nurse that did this to me. She really ruined my life. A social worker said I would qualify to go to a nursing home now. I am 47! I would lose my house, my son, and my credit would be ruined. I am having to look real hard at doing it since I just can't take of myself and have no one here each day. If it were not for my faith I would be gone by now. God wants me here to do more for Him. Good luck to all,
kathy d
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fmichael (12-09-2010), wswells (10-25-2010)