I'm so very sorry for what your daughter is going through.

So far, the replies are right on the money. She needs to be seen by GOOD docs at the best medical center/teaching facility to which you can get her. She needs to have a large workup until they come up with an answer.

If you can get to one of those places, be sure to ask for the best docs available (neurology), ask for a nurse in that department and stress how very serious her condition is or have her primary care doc call and request an urgent appointment.

Wishing you the best.

Good luck and best wishes,

Sheltiemom