Quote:
Originally Posted by kokorogrl
I've had PN for over a year now. Done all the testing and we can not find the cause. Tried the medications and for one reason or another they weren't good for me. Topamax did help a little bit and I liked it but after about 6 months my hair started to fall out so we had to dc it.
I finally got in to see a pain specialist yesterday who wants to try me on a Medtronic Neurostimulator. I've done some research on it and can't seem to find people using it for PN. Has anyone here heard of it being used for that? Has anyone tried it?
Thanks, Koko
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Here is the link to the SCS/Pain Pump Forum here at NT
(it is listed as a sub-forum under the "Medications/Treatments" forurm)
http://neurotalk.psychcentral.com/fo...ysprune=&f=118
It is very active and full of information and people's experiences.
The 'stickies' at the top contain FAQ's and some very impressive links to sites that explain these units very well.
I've had mine for 9 months and it takes away about 75% of the horrible burning neuropathy in both legs
Caring
Rae