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Yesterday I told my mother I'd made an appointment with the neurologist earlier than scheduled because my arms got so tired trying to eat soup the other night. Had to rest in between spoonfuls. She said, "That's a good way to explain the disease to people who don't get it: tell them how you had trouble lifting the soup spoon."
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Stella, you triggered a memory in me. As a child, I had weak bouts just like that too tired to lift a finger. Parents thought it was odd -- even got called lazy a couple of times, but the spells went away as quickly as they came.
Flash forward, I don't have that extreme weakness anymore. If I exert myself, I feel extremely sleepy and would sleep for hours or I would need to sit down every few feet if I'm in the mall. That's a bad day for me.
Now, I know MG is rarely diagnosed in childhood, but I wonder if I had it all along. I'm still waiting on a definitive answer on whether or not I have it.
Next month, I will go to a MG clinic for an outside opinion, because my HMO cannot make up their mind. I'm afraid I might have nothing but a tumor growing on my thymus, if it is not MG.