Quote:
Originally Posted by Reddawn600
I have been fortunate enough to have my ketamine infusion moved up to November 1st at the Hospital for Special Surgery with Dr. Daniel Richman. I know I have spent countless hours searching online and asking for information on the treatment, protocol, expectations, etc/
What I would like to know is what I can give back to this community who has been very supportive of me. Is there anything in particular anyone would like to know, have photos of )if allowed) etc.
I wish more then anything that I could do more to further understanding of RSD but to be honest, I'm struggling right now as a single mom with 3 children and an amazing fiancee just to get through all this and pray there's light at the end of it all.
If there is anything I can do for anyone, questions I can answer, etc, please feel free to PM me/
And yes, I am scared to death of how the treatment will go and what to expect. I already have my boosters set up in Philly with Dr. Schwartzman in Decemeber and feel extremely fortunate so please, let me help you if in any way I can.
Dawn
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Hi, I am very newly diagnosed with RSD and am researching the ketamine infusions. I got a copy of the ketamine docs list and in particular was interested in the NYC area possibilities [I am out of state so am exploring what sound like the best options, I guess wherever I can get in?]. I have read old posts that HSS was not taking new patients, but is that not the case if you [Dawn] are scheduled for an upcoming infusion?
I'm looking for some basic guidance for how to go about this -- such as, I have heard good things about HHS and St. Luke's, a few nightmare stories about Philly, and that's about it; which others should I look into?
I have a consult scheduled with Dr. Kirkpatrick in Tampa to discuss the three-day outpatient infusion, though it sounds like those done in NYC and in Philly are 5-day in-patient, so I'm not sure what to pursue? Anyone had success with that particular treatment or know of anyone who has gone to the RSD Institute?
Do I just need to start calling and see if I can set up an initial consult? I also read on other posts how people had submitted applications to get on a list? I'm not sure of the protocol for making this happen.
Anyway I'm rather ignorant of how to proceed so any suggestions would be helpful. Thanks much!
T.