Hi, I'm Mary. I've just spent the past two hours reading this awesome, hopeful, and mega-helpful thread because... don't want to jinx myself.... my Pain Specialist is submitting approval request to my insurance co. for a PNS!!!! I have ATN primarily in V2 and now some in V1 (upper cheek and around eye). I was diagnosed three years ago but I've had it for 20 years. Always thought I had bad sinus headaches. My pain has gotten much worse in the past 2 years, especially this past year. I have been through all the anti-seizure meds and antidepressants that are supposed to help and have had two radiofrequency ablations with zero success. I'm just DONE with the pain and the drugged semi-existence. I want to be ME again -- the me who had energy and fun and who could walk into a room without checking out where the a/c vents were and who could take a walk in the crisp fall air. I also used love to snow ski but I am realistic enough to not include that one on the list, LOL.

I have a question. It seems from what I've been reading that the electrodes were placed in the area where the pain is, not on the branch of the nerve close to where it exits the trigeminal ganglion? Like if pain is on your cheek right under your eye near the nose, they implant the electrode there? My doctor said today that he will place the electrode on the branch of the nerve along the edge of my face - not where the pain is. Anyone else have that??? Thanks, look forward to meeting everyone! Lily, I remember you from the old TN forum on BrainTalk. I was Mary0705. I remember all the bad luck serious trouble you had after your MVD. I am so glad to see you are doing okay. I hope your PNS ends up working wonders! I post sometimes on the TNA forum - I am lilysmom over there. MY Lily is a vulgar, obese white bulldog, LOL! I actually have two white bulldogs, the other whom is a sweet lovey baby named him Cesaer but l never can spell his name right so that's why I am bulliemom here!