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Old 10-26-2010, 10:10 PM
Annie59 Annie59 is offline
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Join Date: Jul 2010
Location: Live in upper midwest
Posts: 439
10 yr Member
Annie59 Annie59 is offline
Member
 
Join Date: Jul 2010
Location: Live in upper midwest
Posts: 439
10 yr Member
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Abby, Oh gosh this is great!!!!!!!!! This helps my case. The my 'nutty' neuro who did my SFEMG 'ON MY STRONGEST ARM' would never admit that I should have been off longer or that the meds can last longer. She even argued this point with my pulmo who is far far her senior and the sweetest fella. He tries to defend her but as of our last conversation he is getting some of the problem with her.

I was back in some notes the other nite I found a note about how this doc told a fellow MGer that mestinon is useless as she threw a prescription of it at him. He initially had to be referred to her twice to even get any tests done as she didnt believe it the first time. When he had positive tests she said he had to go on high dose steroids for a year (or two I think). He concerned said is there side effects I should be concerned about? She said simply no. She is very brief like this. It is hard to believe she is the muscle neuro this top midwest hospital/clinic brought on. She is not who I had when I was admitted for a probable myasthenic crisis from an appointment with a neuro that was a movement specialist.

Again Thank you so Abby
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