Next month, I'm going to the MG Foundation of California, and I'm going to share this info. with them.
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. If they did a blood test, they're looking for those antibodies.
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They did, and it was negative. The only thing that suggested MG was the enlarged thymus with a 5.7 tissue growth, and a 10yr. old nerve conduction test and SFEMG that showed peripheral nerve weakness.
The odd thing is that I had another nerve conduction test (no SFEMG this time) and it showed no weakness, although I am just as weak on the right side as I was ten years ago. The doctor said that I could have nerve weakness, regardless of the test results, so. . .
Update: I went to look at my medical record online and I notice the "unsure" neuro-muscular specialist indicated a diagnosis of MG. Well, he actually typed "asthenia". What???
He told me in his office that he didn't think I had MG, but I noticed he kind of wrote that on my record on his follow-up.
I do know that late last month, he called me in to do a blood test for another disorder, but I can't find any record of it on my chart. I'm wondering did he have a change of heart and changed the chart????
So, I guess that means I have four doctors confirming MG. I'm still going to the MG Foundation of California to find out whether or not I should have my thymus removed, because I don't feel too comfortable with this neuro-muscular specialist's advice.