are really depressing to read, and each time I see the neuro or GP, the reflex tests are just a little teeny reaction to the bonks in those key spots.
Prior to getting my neuropathy, I'd had to WARN docs to get outta range as my reflexes had been super fit and ultra 'reactive'. Now? It's a YAWN. Tho I do hope for a time when more 'reaction' can and mite happen. It's happened a couple of times before, sooo? I HOPE! At least? The legs are working [tho not too well? They WORK.] and for that I'm grateful beyond imagining.
When your 'sheath' is missing? From all I've read either you are in constant agonizing pains [been there] to total nothingness. IF it's just the sensory nerves, you just have to work to keep your muscles toned and functioning to help compensate for what your senses of being in 'time and space' are lacking due to this 'injury' [or insult-which it is at times called]. Living with nerves literally akin to 'live wires' disconnected, for long periods of time, is not the way anyone sane could choose. But, we got IT. And, we must try and make the best of it all, by living healthier, watching our meds [and their potential problems for us] and using common sense in regards to the help many such as Mrs D provide regarding nutritional supplements. Anything reasonable to help, but nothing overt or from less than reliable sources!
Nerves die [when they die] FAST! They grow less than 1/4" a month back! When you multiply that by the hundreds/thousands of miles of nerves that mite be affected? Takes a long while.
Ever see a root-bound spring potted plant to put outside? Look at that 'tangle' of ROOTS [AKA nerves in us]! We are even more complicated! It's humbling, mind-boggling, and awsome all at once.
Please do what you can? Don't panic, and keep faith in yourself that YOU CAN beat this to a good degree! 's - j