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Old 10-28-2010, 07:34 AM
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NeuroNixed Craig NeuroNixed Craig is offline
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Join Date: Sep 2006
Location: Richmond, VA USA
Posts: 501
15 yr Member
NeuroNixed Craig NeuroNixed Craig is offline
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NeuroNixed Craig's Avatar
 
Join Date: Sep 2006
Location: Richmond, VA USA
Posts: 501
15 yr Member
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Hi acraig,

Welcome to NeuroTalk!

First, allow me to point out we are not in the medical profession but victims, I mean patients of MS or related yet undiagnosed disorders.

Having read your journey so far there may be several things going on with your girlfriend above and beyond possible MS or vaccine toxicity reactions. I agree you would obtain a higher level of medical evaluation in the states, especially at the Cleveland Clinic, Mayo Clinic, John's Hopkins, etc. The fact that you are Canadian does present serious financial challenges.

I would recommend you attempt contacting a highly regarded specialist at the Cleveland Clinic sending them the data on her case. They may make a decision to go ahead and see her at a reduced or waived cost to you. Her case is challenging and highly complex. Specialists love those kinds of challenges. It sounds as if you have pretty much exhausted the Canadian opportunities unless I missed something and you haven't yet been to Toronto or Montreal for a higher level of evaluation at a teaching hospital.

Possibly contacting your local MS Society and linking to a US MS Society office in Cleveland may be of assistance.

Of note, it is not unusual for blood labs, MRIs, and LP's to all be negative especially in the early stages of a disease. Doctors like to have the organic results jump out at them so they can diagnose before the next commercial, like on House or ER. With many of us that is not the case. My situation took a full 10 years to obtain a firm diagnosis after too many tests, 2nd and 3rd opinions, rapid progressive disability. In the end, who cares what they call it, there is still no treatment or cure in my case and the prognosis is terminal. Such is life.

I wish you good luck and please keep us informed of your progress.
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Craig ~ NeuroNixed
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Richmond, VA USA
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