Mvoyvodich, I'm glad the biopsy went well. I have to be honest, though, I'm not sure why they did a regular biopsy when the specialized biopsy of the intercostal muscles or the elbow to shoulder are done. Those biopsies are more dangerous and are only done at two locations in the U.S.: Mayo Clinic at Rochester, MN and at UC Davis in CA. Those two locations are also the only two where you can get the genetic blood tests done for any of the congenital myasthenic syndromes.
Slow Channel Syndrome is where the muscle gets too much acetylcholine, which is the "opposite" of MG. The "channel" is open for too long, which is why they call it "slow." Therefore, Mestinon would not work. Instead they use Quinidine.
Were you on pain meds before the biopsy? Did they tell you to stop any meds? Have they determined why you have pain because MG, CMS and LEMS do not involve pain, at least as a primary symptom.
http://neuromuscular.wustl.edu/synmg.html
http://neuromuscular.wustl.edu/lab/mbiopsy.htm
http://brain.oxfordjournals.org/cont.../1061.abstract
http://onlinelibrary.wiley.com/doi/1...GT+to+1900+SGT.
I hope you do get answers. A second opinion may be necessary, if you have not gotten advice from either Mayo or UC Davis. Be absolutely sure they know what is going on before they treat you. Genetic CMS disorders do not respond to immunosuppressant therapy, IVIG or plasmapheresis. They are NOT autoimmune diseases.
Make sure you do not use the muscle very much in the next few weeks to promote healing. If you have peripheral nerve damage, which everyone does when a muscle is sliced into, you can take sublingual methylcobalamin tablets to help heal those nerves more quickly. I get mine at
www.iherb.com and use either Source Naturals or Jarrow ones.
I'm seriously concerned that you have a doctor who is out of their realm. The CMS genetic disorders are not known in depth by very many doctors and you really need someone who knows what they are talking about. I hope you get answers soon. It may take a couple of weeks. Good luck!
Annie