I have a 13 year old who has just spent a year with burning/stabbing lateral thigh pain before she had a diagnosis of Meraglia Paresthetica. We are considering the radiofrequency ablation at the University of Michigan. But the doctor had us try a topical nerve block first, which is a compounded mixture of lidoderm, nuerontin and an antiimflamatory. It is like a miracle cure right now. It has completely numbed her nerve pain. SHe had been so disabled by this pain over this last year but now she is rarely in pain and is weaned off lyrica and other pain meds.
I can post the exact coumpound so others can research or ask their doctors about it if requested.
It has been 5 weeks and we no longer are in need of getting the ablation. The Ann Arbor pharmacy said this coumpound can be used for a long time with no complications. Only a little of the actual medicine is actually absorbed so there are little side effects.
My daughter developed MP after fracturing her pelvis a year ago doing the splits. THe injuried leg was the leg that went backwards injuring this nerve.
KC
Quote:
Originally Posted by thunderdog4
Hello, fellow MP :grouphug:
I have had constant severe MP for 6 years. Have tried every drug the doctors could think would help - none did. Next week I am scheduled to have a Radio Frequency Ablation at the Mayo Clinic in Scottsdale. As I understand it, a thin needle that is attached to a radio frequency emitting device will be inserted into the nerve that the doctors have identified as causing the MP. I have been told that they will bring the frequency to 45 degrees (frequency, not temperature). They say that this often causes the nerve to go "dead" without burning it or cutting it.
I am hoping and praying that this will be the answer:smileypray:
Have any of you had this procedure? Did it work for you? Any advice?
I am a new member and look forward to chatting with anyone who understands this pain.:circlelove:
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