Damn I'm sorry that you have had it that long. I wish you good luck with this new neurologist. I had luck with my first neurologist but there was nothing else for him to try and or could do so they medivaced me from NAF Atsugi, Japan to Balboa. And yes I tell everyone that's all that I am is a guinee pig. I'm so sick of it but I imagine you are so much more than I can understand. But I just got more test results back from my urology specialist and she said that the RSD is causing me to have bladder work way to hard and also that its starting to make my kidney's not do to good. She said there is really no way to fix this and getting you a kiddney transplant they wont do because of the bladder. So she told me that within 10 years or sooner I could have kiddney failure. She said that the only thing they can try to do is implant this interstem therapy device which is just like the spinal cord stimulator which I had before and it sorta worked. But then I fell and it made everything worse so they took it out. So anyway she said it might relax the bladder to where you could have more time but thats all we can do. And I'm sick of when people bang my leg because it makes me pass out and go into a seizure and I always wake up in the hospital and the er docs are sick of seeing me there because there's nothing they can do so its just a big waste of time. So that's just a few of the reasons why I want that so bad besides that I might have a chance at learning to walk and maybe even run. Are you able to get up and put weight on your leg?
Thank you so much
Sincerely
Tina