Are you one mestinon or the drugs that are similar? The reason I ask is that I have major breathing involvement and can tell you what that is like. But I also need to say is that the flutter is what for me has been a side effect of the mestinon at times. My body is very sensitive to salt and fluid levels so I think if I am off that is when this happens.

Mestinon has now been tested for POTS which has to do with Tachycardia. POTS stands for Postural Orthostatic Tachycardia Syndrome. Dr Low neuro at Mayo Clinic Minn is the one who has just finished a study on this. (I think it was just finished).

My breathing is so poor today so I gotta go but will check back in with more on what I experience. Right now it fells like my chest is surrounded by walls not muscles to help. It is too much work to breath and sometimes tears come but ya know I have to silently cry as as crying normally would make it worse.

Annie59