Hi Friend2U,

The whole journey when dealing with a chronic or potentially chronic disease is scary to everybody. DO NOT feel like you are alone. You are not, by a long shot. We've all been there or are going through it right now.

It is totally illogical not to have control over that which we have had control all of our lives. Now our body seems to have a mind and life of its own. There is no reason and it is a waste of positive energy and time to even ask, "Why?" The key to survival is to evaluate, adapt, and overcome the challenges as they are presented.

My disease, not MS, has progressed to involve severe involuntary movements of my head, neck, torso, arms and hands. To the point my wife bought me a 1lb. wrist weight to wear so I can better control the computer mouse and eat without throwing food on her or the people around us. Personally, I think the food thing is the real reason.

I never know moment to moment what my body is going to do including simply fall down. Although at restaurants we do charge for a "floor show." OK, just kidding! You got to have a sense of humor and laugh at yourself to relieve your tension and those around you who don't understand.

In our family the motto is, "Just go with the flow." It makes life so much easier. You may try and fight it, but soon you realize that too is a waste of positive energy better spent elsewhere.

Your are in the right place because we know and understand. You are in my thoughts and prayers.

Peace be with you,