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Old 10-30-2010, 06:49 AM
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Dejibo Dejibo is offline
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Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Dejibo Dejibo is offline
Elder
Dejibo's Avatar
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
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Years ago, before I even knew the word MS, the radiologist said "classic migraine lesion pattern" then went on to be wordy with other stuff and said "demylination disease unlikely, but should be ruled out by neurologist." now, my MD at the time, only got the part of the report that said "classic migraine" and I was labled a whiner with a headache. Given a lecture on how migraines dont cause drop foot, nor would a migraine cause the optical stuff I complained of. Fatigue was put down to being a prison employee, a full time mom, and so on. Fast forward 6 years later, a move to a new town, and the local MD said "I think you may have MS" and into the scanner I went. The radiologist said something about white matter lesions and had a list of possible causes including migraine, drug abuse, enviornmental exposures, and last on the list was demylinating disease is a consideration, but due to the patients age, its unlikely" My current MD wanted to get to the bottom of it, and did a thorough search.

After exhaustive tests, it was concluded I didnt have 99% of the things that would cause this lesion pattern, including migraine syndrome. Local nuero got involved only to tell me "you are too old to have MS" and was dismissive. My MD didnt like those answers so off to the MS clinic I went, and they said "oh yeah! you have MS, you have it so clearly based on your MRI and sx, we dont need a spinal tap." so...how is it so many folks can lay eyes on the same MRI and draw so many different conclusions?

Welcome to the wonderful world of MS. I sit in the MS chair and so many times say " are you SURE I have MS?" to which their response is "we are VERY sure!" We dont just hand out that title because its easy. It changes many things in your life including the ability to get a job, insurance, benefits, and such, and we would keep you on limbo island if we had any hesitation. So...I must really have it.

Hang in there.
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