None of us really knows what our body is going to do, when, or for how long. My position is why stress about it. Maybe I'm just more "seasoned" than many of the people new to this disease and my perceptions of life have changed a great deal also.

Not only do I not walk well even with forearm crutches, I am also very animated with the involuntary movements. I fall down more often now but I make sure not to really share that with my wife if she is not a witness.

There has been talk of getting around in the house. I now have a top-of-the-line power wheelchair made in Sweden I use only in the house. It weighs 280lbs. and completely custom built to my measurements allowing me to get everywhere in the house but the two bathrooms. I use it about 75% of the time. The rest of the time I get around, barely, using my forearm crutches.

My wife says, since my disease has progressed and I try to move short distances without the wheelchair, that she didn't know she was living with a drunk Captain Jack Sparrow. I used to wall walk and furniture bounce. No longer because I can't trust my balance at all. Besides, they decided not to make it an Olympic event so what's the use, right?