Originally Posted by emsacco

It has been 4 1/2 months since the implant of my SCS for atypical face pain. My recovery has gone well and I return to the doctor next Monday. I also meet with the BS rep to see if he can tweek any of the programs. Most days the stimulator is sufficient for relief. I think my tolerance level is much higher than when the pain first started.

I have been having nightly headaches and pressure in the back of my head, so I am back taking one dosage of Lyrica. I am not sure if it is doing any good.

When my pain first started, my MRI showed a meningioma (benign brain tumor) on the lining of my brain. It was wait and see if the tumor grew. If it grows too big, it can cause various problems and would need to be removed. My 2 year follow-up CT scan (no MRI's anymore) showed it has doubled in size. The NS recommends gamma knife (radiation) surgery to stop the tumor from growing. The surgery is not scheduled yet -- probably during the winter. It is a blessing that I needed the original MRI and the tumor was discovered. Most people find out about their meningioma when they are having issues (stroke or coma).

I also was diagnosed with Celiac Disease as a result of all of the blood tests that were run as part of the diagnostics of my pain. Another blessing that this was discovered.

I have complete confidence that God is in control. He made sure I found out about my tumor and Celiac Disease. He has also been faithful to allow for the treatment of my face pain.

I just wanted to share my story and God's blessings!!

Emelie