First, hugs ok take another one


Do you qualify for meals on wheels? They drop off food to your home. Do you qualify for a home health aide? they come to your home to help you do basic daily living things like...dishes, or vacuuming, or shopping and washing up your own body, laundry and the like. Its wonderful to have friends, but it would be better to have your friends over to watch a movie or a cup of tea (even if they have to make their own) than mopping a floor. It sounds like you more than qualify for this assistance.

Many folks have had the supra pubic catheter and while you may view it as a defeat, I hope you will switch your prespective to one of freedom. It would give you the peace of mind that you are not going to wet your pants before you can make it to the potty. You could get off the meds.

The life that you are leading is not a fun life, and needs a tweak. PLEASE go visit your MD and re-explain to him that you are having many troubles, and ask HIM to sign you up for the services thru social care programs. His office will have much more knowledge about what and where they are. its easier than chasing them down yourself. If he is not listening to you, or dismissing you then...dismiss him! Go to an MS clinic and get proper help instead of dealing with someone who foo foos your symptoms (sx) and diagnosis (dx) While some prescriptions (rx) can help with spastic issues and bladder issues some will be much less effective without physical therapy (PT) or occupational therapy (OT) Even if you have someone come in to massage you, or use a vibrator massage unit to help loosen your muscles.

From what I see, you need two things. #1 you need HELP! please petition your MD for it. You need hands on help such as house work help, meal help and daily living need help, and help to get to and fro. #2 you need some mental help. Depression and frustration are a common companion of MS patients. You should not have to live like this. Even if you use a support group for cheerleaders, or a therapist for help to see the brighter side, lets say to help you see that supra pubic cath as freedom instead of a defeat.

Come back often and spill your guts. the rest of us do. We kick, scream, have bad days and then come back and share celebrations. Trust me, we get it.