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Member
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Join Date: Apr 2008
Posts: 900
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Member
Join Date: Apr 2008
Posts: 900
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Well, I had infusion #24 today. Generally no
problems except a headache and fatigue when I got home. However, a woman getting IVIG in the infusion room insisted on leaving in the middle of her infusion, got argumentative with the nurse and doctor who was called in and tried to pick a fight with another patient. She ended up leaving and things calmed down.
I'm most likely going to get #25 (my last infusion) in Dec. and then I'm off on vacation abroad. No word still on the JC virus test at my clinic! Of course if I can get access to it and I test negative I will stay on the drug.
I have to confess that the latest PML case has freaked me out a bit given that the woman with PML has been posting videos on YouTube and her husband is now keeping people up to date with her status online (see the flowers4ms facebook page). I guess when you put a real person together with the disease it makes it seem more real and frightening. I wish her well.
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On Tysabri and love it. .
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