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Old 11-03-2010, 01:55 AM
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Judy2 Judy2 is offline
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Join Date: Sep 2006
Location: PA
Posts: 1,236
15 yr Member
Judy2 Judy2 is offline
Senior Member
Judy2's Avatar
 
Join Date: Sep 2006
Location: PA
Posts: 1,236
15 yr Member
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Thank you everyone!! I know you're always there to "talk" with and give good advice and support. Yes, you're all correct in suggesting I could use some in-home help. My daughter has mentioned it a few times too, but that's just another thing to get my "head around". With so many things being taken away, I've found adjusting to one at a time is the best for me. Too many all at once is overwhelming.

I do think the first would be personal help (friends are great, but not for that) and help with meals. The friends I mentioned before are actually the two sisters around my age, that do cleaning, errands, etc, for me. Over the years, they've turned into really good friends. They work for other people too, so their time is limited.

There isn't a church family to help. Seems like I've had really bad luck with that. I was the choir director, played piano/organ in two churches for ten years, my "ex" and I were youth group leaders (teenagers), etc. When he and I separated, 21 years ago, my "so-called" friends and the powers that be, turned their backs on me even though there were no other people involved. I then went to the second church where people were very inviting. Then the MS got worse, most of the congregation were older folks and the whole church eventually folded and the building sold. Guess that's partly why I wonder what God's plan is for me having this. After all those years of serving Him......WHY?

Sorry, didn't mean to get carried away. As to the doctor situation, there are no MS clinics or specialists near here. The closest is Philadelpia which is a 3-1/2 hour drive. The neuro I had who retired, was the best for MS. Hopefully a new one or two will be brought in. I have spoken with an occupational therapist who was very helpful. Maybe she would have some suggestions.

Perhaps some PT too. My legs, feet and ankles are swollen all the time from lymph collecting there from immobility. 'Water pills' don't help that. Need to see my GP and someone to give me info on a s-p catheter. Reminds me of my mother who had a colostomy with rectal cancer.

Thanks so much for all your good thoughts, prayers and hugs. Nothing can take the place of that personal touch.
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.....Judy
SPMS -- FIBROMYALGIA -- Ouch! and Ouch!
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"Thanks for this!" says:
debw (11-04-2010), Dejibo (11-03-2010), NurseNancy (11-03-2010), soxmom (11-04-2010), TRESA (11-08-2010)