Hi Rachel,

Yes I had the SFEMG and it was also negative. Yes, I was diagnosed with symptoms and treated with Mestinon alone. My symptoms started with having a hard time walking up the stairs and progress drastically over the next couple of months after I got a cold/virus to being very weak in my face muscles (droopy eyes, couldn't really make facial expressions, etc), jaw, neck, back, arms and leg muscles. I gained a horse voice and had issues breathing (shortness of breath). No pain. I just got weaker everyday until they started me on the Mestinon. It was pretty scary at the time bcuz I wasn't strong enough to drive, brush my teeth, put on my clothes or cook for myself. I lived alone at the time, so my mom was visiting often to help out. Now I can do all of those things, but still get exhausted/fatigued. If I don't rest immediately then the fatigue quickly turns into weakness. I'd say I'm about 85% of who I used to be in terms of energy when I'm having a good day, which might not be too bad since I used to be pretty hyper...LOL. However a good day consists of not working and doing minimal stretching to use my muscles. As soon as I work out, even lightly, I knock out for the rest of the day. I get weak and sleep. I can do a total of 12 minutes on the sit down bicycle, going fairly slow; but, when I'm done, like I said, I'm shot. Working is a real challenge too. I am beat after 8 hrs and pretty much go home to bed to rest for the remainder of the evening in preparation for the next day.

Oh and one more thing, then and now, I cannot take heat (sun heat, heater, or super hot water). My body gets overheated very easily and then it makes me super weak.