Sorry to hear that you STILL haven't gotten word on the JCV testing yet, Natalie!
Overseas for Christmas?? Any room in your suitcase?
For those who want more info on the woman doing youtube vids who has PML, here's a link (thanks Sal!) I haven't watched it because I'm still on dialup and it's slooooooow! I'll have to wait until I am in an area with a hotspot and can check it out so if someone else watches and can review, please post.
http://www.youtube.com/v/X4aOG2UJDFA...</param><param
I had # 45 yesterday, got moved up a day on both infusion and MD appt. AAARRRGH!
I went in with 2 hours sleep, I was late but got infusion early enough to make it to the neuro on time and he was running late! I slept for a few minutes during infusion, got a lovely lunch and it was as usual, no problems, no concerns on my end.
No drug holiday talk, did the times walk for Ampyra and was told I have the fastest time out of all their pts. on Ampyra, talked a bit about ECTRIMS and the PML cases since last appt, talked about reducing my appts. back to 6 month intervals, but decided to stay at 3 months for now. I am still the only negative result out of everyone tested in his practice, pondered yet again who is positive and negative and how transmission happens, talked a bit about Gilneya, he says a LOT of his patients have called to ask about it, med center is setting up where pts will be monitored for their first few doses, sounds like it's going to be monitored at every step.
Life is good! Hope everyone's doing well!