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Old 11-04-2010, 09:02 AM
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Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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Sorry to hear that you STILL haven't gotten word on the JCV testing yet, Natalie!

Overseas for Christmas?? Any room in your suitcase?

For those who want more info on the woman doing youtube vids who has PML, here's a link (thanks Sal!) I haven't watched it because I'm still on dialup and it's slooooooow! I'll have to wait until I am in an area with a hotspot and can check it out so if someone else watches and can review, please post.

http://www.youtube.com/v/X4aOG2UJDFA...</param><param

I had # 45 yesterday, got moved up a day on both infusion and MD appt. AAARRRGH!
I went in with 2 hours sleep, I was late but got infusion early enough to make it to the neuro on time and he was running late! I slept for a few minutes during infusion, got a lovely lunch and it was as usual, no problems, no concerns on my end.

No drug holiday talk, did the times walk for Ampyra and was told I have the fastest time out of all their pts. on Ampyra, talked a bit about ECTRIMS and the PML cases since last appt, talked about reducing my appts. back to 6 month intervals, but decided to stay at 3 months for now. I am still the only negative result out of everyone tested in his practice, pondered yet again who is positive and negative and how transmission happens, talked a bit about Gilneya, he says a LOT of his patients have called to ask about it, med center is setting up where pts will be monitored for their first few doses, sounds like it's going to be monitored at every step.

Life is good! Hope everyone's doing well!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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"Thanks for this!" says:
Grammie 2 3 (11-04-2010), Natalie8 (11-04-2010), SallyC (11-04-2010), shayna (11-21-2010)