Annie59,
Do you know why you are unable to breath? Meaning is it from you MG and your lungs are weak...or do you think it's related to pulminary issues? In either case you should see a doctor today. Perhaps you daughter can call your new neuro and explain the situation and see if you can be squeezed in today. If you're neuro cannot squeeze you in then, I'd go to urgent care. They may not be a specialist in your disease, but maybe be able to provide you temporarily relief/treatment of the symptoms until you can meet with your new neuro.
I'm very concerned that a snowball reaction will occur and you will go into MG crisis. It is not good when your involuntary muscles, like lungs or heart, start to become weak...that by definition is MG crisis. This is not something to "wait out" and see what happens. Action needs to be taken.
Take care and keep me posted.
Quote:
Originally Posted by Annie59
There is a larger story about what happened Tuesday when I saw my pulmunologist. For now tho I have a fella from the Civil Rights office I am supposed to do an interview with by phone. It was supposed to be tomorrow. That is off. Last nite breathing was so bad I have to stop talking so I get some better. I dont get much better at this point but not talking and total rest do see minor improvement. I am trying to just take care till I get to the new neuro Tues. I didnt plan to get worse again but did the week my mom went into the hosp because I spent alot of time on the phone helping my sis. Its just bad timing.
If anyone has any suggestions I would sure appreciate it. I asked if next Friday would work as it would be over a week to try to be ready. But even that is a question as I have the big appointment, traveling to univeristy Tuesday. He said no and asked about Tues or Wed. The next Wed I see my surgeon about my right cataract. The beginning of the weeks are just a bad time and I am in bad shape. My daughter is trying to negotiate this and has made all the calls I needed to make today to cancel or move other things so I can not talk all day.
Annie59
|