Establish an Independent PWP Voice
Independent PWP should be a patient advocate group independent of established charities and aware of the value of medical research to both public health
and to the global economy. Experienced patient advocates taking the voice of PWP to clinicians the public pharmaceuticals and the medical research community strategically led on behalf of PWP patients.

Effective Patient Input
“Decisions about me not without me”

Doldrums and Depression weve no time for such luxury ladies.

Networks such as this forum are a valuable tool for all PWP and perhaps they should be given credible status as a resource worthy of recognition and inclusion by clinicians and researchers and managers of health systems

Improving Health Care PWP for ourselves.our future
The future must be with electronic and patient held records. Electronic records must involve some form of international co-ordination in the development processes or the tragic waste of shared information continues, security and access to data should protect but not obstruct.

The possibilitys are incredible but the obstacles are endless

Better data quality and collecting, potential to speed up research initiatives development and outcomes.
Earlier assessment and treatment for problems with medications, better access and co-ordination of care between clinicians.On and on.

Accredited researchers should be required to share results of any research surely its about progress saving lives not protectionism.Any chance?

How do we do it?