what a mess. i hope you're collecting copies of all test results and copies of your mri's, if you had them. this will all be helpful to the next neuro you find.
and, i hope after all this that you find one willing to work with you for your own benefit.

any good dr needs to validate what their pt is saying and be part of the medical team of which YOU'RE the head.

don't stop advocating for yourself. and, i'd get your psych and therapist to write letters documenting that this is NOT in your head.

you might even want to get another neuro opinion before you're labeled with something you don't have. just a thought.

good luck.