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Old 11-05-2010, 10:28 PM
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doydie doydie is offline
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Join Date: Aug 2006
Location: southern Indiana
Posts: 5,533
15 yr Member
doydie doydie is offline
Elder
doydie's Avatar
 
Join Date: Aug 2006
Location: southern Indiana
Posts: 5,533
15 yr Member
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Welcome to NT!!!!!! When I was first diagnosed I went to a support meeting. I thought it was the correct thing that to do, the thing that everyone did! I was young, just 47, an RN, busy Mom and I didn't like what life had given me. But I was not ready at all for a support group meeting. I saw people who had all differnt forms and stages of MS. I really remember this very vibrant looking woman who had to be fed by her husband. So many people were either using canes, manual or power chairs. I almost ran out of the room! But like you, I can't run anymore!!!! I just an't ready to see that some people have those problems and that I to might have those problems. I just didn't understand how a person could still be a 'person' and have all that wrong with them.

Then I found Brain talk which eventually many of the ones from brain talk are here at neuro talk. This is my support group. A long time ago we had groups that would form and meet for a weekend. I went to one of these. There were several people that were using manual or power chairs but it was OK. I knew them as people by then. I saw that the unkwon faces I talked to all the time on the internet and had grwon to know and love and see worth in were also in a wheel chair. But it didn't amtter then. I already knew them as some one worth knowing. But it was to much at first for me to see these unknown people who shared my illness in situations I could not handle at the time.

So is a support group right for you? Onlly you can tell that. The organizations are wonderful. I get all sorts of monthly newsletters, we have weekend getaways, educational meetings (drug companies like to spend a lot of money to encourage people to buy their product. They have wonderful meals!)

If you do join a support group don't forget us and stay here with us as well.

Last edited by doydie; 11-05-2010 at 11:23 PM.
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"Thanks for this!" says:
NeuroNixed Craig (11-07-2010), SallyC (11-05-2010)