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Old 11-06-2010, 11:38 PM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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Hi, YaYa. Do you have another name or do you want us to call you by that?

MG double vision is what is called "binocular" double vision. When you close one eye, the double vision goes away. Double vision can look like "blurry" vision. Take your pointer finger and put it about arms length out from your face. Slowly move it towards your face. "Normal" people can adjust to this change and will not see double anywhere in their vision. You may only see two fingers on the sides on some days and in front on others. It all depends upon which muscles are weak, causing your eyes to focus out of sync.

A neuro-ophthalmologist can help assess your DV and any fatigable ptosis.

A lack of gag reflex can be indicative of MG. We have 640 skeletal muscles and they can all get weak and not work as well.

You should probably ask your primary doctor, if you haven't already, to make sure you don't have any thyroid or other hormonal issues, vitamin D, vitamin B12, a metabolic panel, etc. Get your BP and a baseline ECG checked. You can go get breathing tests done by a pulmonologist to see if you have signs of chest muscle weakness (MIP and MEP are the tests that some docs don't run but need to in MG).

There are so many ways to approach figuring MG out, including photos of your face.

Crazy is a label that should be reserved for doctors too lazy to help someone who has been sick for FOUR YEARS! You are not crazy.

Did they do both the Acetylcholine and MuSK antibody tests?

I hope you do get some answers soon. Sometimes you have to see more than one doctor in order to gather up more evidence. It's worth it. Tiring but worth it.

Annie
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"Thanks for this!" says:
TRESA (11-07-2010)