Kim, Have they ever tested you for celiac disease? Yes, there are muscles in your ears which can be affected by MG. Celiac disease is common and comes with a slew of other symptoms, like hearing problems.

Don't be embarrassed. Well, that's easier said. I absolutely hate when my eyelids and entire face droop while I'm running errands, which they do every single time. That looking like you're drunk thing is common in MG. I'm pretty sure I've bumped into every wall in my apartment. It makes me feel stupid every time, even though I know it's my muscles.

Whether you explain it to your friends/family or not is up to you. It might help though.

Don't attribute every new symptom to MG though. It's always best to bring up anything new to your primary doctor, not your neuro! Neuros deal with their specialities and your primary doc can assess things in a broader way.

Keep asking questions. There is a lot to learn, think about and adjust to! You do know that drinking can make MG much worse, right? If I even have a sip of alcohol, I can wake up unable to breathe.

Annie