Paula,

Just want to thank you for that inspired and inspiring post. I am in. I think a complementary therapy database along the lines of how we track our meds on PLM is an incredible idea and think it might be helpful to have other members with MS or AD, so it is a database for neurodegenerative disorders. Who knows what kinds of data would emerge?

I also think that funding and designing our own trials will be inevitable if we want to see any real progress in our lifetime. Patients with MS have recently done this, so why can't we contact them to see realistically what is involved?

All I know is that I am on the verge of making all this a primary focus in life; I want to ensure that my 20 month old son does not have to make any icky decisions about what to do with his disabled, diseased mama. Researchers are really close to finding something real breakthroughs but they need nudging by us. If they aren't going to see the value in us, than it is time we start to do it for them.


Laura