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Old 11-08-2010, 06:30 AM
gabbycakes gabbycakes is offline
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Join Date: Oct 2008
Posts: 518
15 yr Member
gabbycakes gabbycakes is offline
Member
 
Join Date: Oct 2008
Posts: 518
15 yr Member
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Quote:
Originally Posted by lorigood243 View Post
I am just so tired all day!

I sleep with a Cpac Machine ( and hate it)

I tried Provigel for many months, never helped
I take caffine pills throughout the day for when i must be awake
i tried the natural herb call Maca,,didnt work
I even tried a diet pill when trying to lose weight..still no energy
I even take 20mgrs of Prednisone a day..no energy

Has any of your doctors told you what it is about RSD that makes us SO tired?

I cant do any exercise because of herniated back discs and my entire abdomen is swollen..i cant do anything to raise my cardio. I do sit down exercise videos and lift small weights. there just has to be something to help with energy.

please tell me what you do or take
thank you
Lori
Hi Lori,

I used to get quite tired when I was on medications such as Lycria, topomax, Neurontrin and others I can't even remember all I used to take. That was all about 3 years ago before my last ketamine infusion. After my last one I just got off almost everything except for 1 pain med. and I'm hypo-thyroid so I take synthynroid,which has nothing to do with the RSD. I really think is was the gabapetine drugs that made me so tired. I remember driving and almost falling asleep I just could not keep my eyes open. So if you are taking any of that stuff maybe it's that.

I just started over the summer with not sleeping properly again. I don't know what this is all about but right now I have the worst sleep pattern. Example: Yesterday woke up a 5am, went to the gym with my daughter came back tried to clean 1 bathroom, watched some football, my husband cooked ate and by 7pm I could not keep my eyes open.. Fell asleep woke up at 1am up until 4am and now I'm up for the day since 5:45am. Also now my arm/shoulder is killing me because I tried to clean a bathroom. Very frustrating. I have to try and get out of this pattern any suggestions are welcomed.

Gabbycakes
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